Update on Dylan

Sorry I haven't written in a while.  It has been so crazy with Dylan lately.  His reflux has hit an all time bad.  He wasn't even eating for a while.  He came very close to having a feeding tube put in but luckily he has started eating enough that he doesn't have to have one.  He is so miserable.  He hates the bottle and screams while eating.  The doctor has switched his medicine again so maybe this will work.  On top of all of the eating issues his eyes have started doing some crazy things.  When he looks down his eyes go to far and they twitch.  We went to the eye doctor and he said that he isn't really concerned.  He thinks that it will correct itself over time but it is still very scary to see.  He is also turning one eye in more than it needs to so he has to wear a patch on each eye for two hours a day.  He is so cute and looks like a pirate.  He is taking everything so well and being a little trouper.  I just wish I could handle things as well as he does.  I flip out about everything because I worry so much stuff means other crazy things.  We go back to the neurologist and cardiologist on Wednesday.  I am hoping that the neurologist will be able to put my concerns at ease.  Dylan's heart is doing wonderful.  It looks like he is going to start growing out of his medicine.  That is a wonderful thing but also very scary.  I am so worried that the medicine has just done such a wonderful job controlling it that if he grows out of his med that he will start having episodes.  The only way that we will know is if we do this, so here we go!!!  Everyone say a big prayer that everything goes well with both of the doctors.  That is all that I have right now.  My stomach stays in knots and I constantly worry.  I pray that all of my fears will not be realized.  

Warm as a Lamb

I found this great product called Warm as a Lamb.  For anyone who runs, walks, or lives in the south during spring I think you will like this.  I found it at Toys R Us and they have it at Target and Walmart as well online.  Basically it is like a big blanket for your stroller.  It is insulated and you pull it tight around the bottom of the stroller so air doesn't get in.  There are vents on the side and you can control how much air gets in.  It has zippers on the top so you can get the kids out and not have to take the whole thing off every time.  It also folds up with the stroller.  I am so excited about this.  I hope it works as good as it says.  I am going to get one soon.  The price is a little much, but if it works it will be well worth it.  It comes in single and twin size (side by side and tandem)  If anyone has tried this out please let me know what you think.  Hope all is well

So Frustrated

Poor Dylan he isn't doing any better.  He isn't eating enough and I am really afraid that he is going to start loosing weight.  I am at a loss.  The GI doctor did not even examine Dylan when we were there.  He just upped his prevacid and told me that it will take a while to get in his system. Well, today has been 3 weeks and I think that is plenty of time.  I am so sick of these doctors telling me that he has reflux.  I know that he had reflux but I have a feeling in the pit of my stomach that something else is going on, but nobody wants to do anything until he starts loosing weight.  I say why wait.  Why can't we be proactive instead of reactive.  We go back to the pediatrician on the 18th and if he is still doing this I am going to demand that she do something or send me somewhere to someone that can help me.  I am fed up with the reflux answer.  I did switch his food today.  I am going to try this for a week and see what happens.  Hopefully, this will be the answer.  I really don't have anything else to do at this point.  Please say a prayer for my little Dylan.  He just seems like he feels so bad and I can't do anything to make it better.  Of course all you know that is the worst feeling in the world.  Hope this finds you all well.

working from home

I really don't understand why I can't find legitimate work from home.  I have looked all over the Internet and all I have found is the "if you give me $100 then you can earn $$$/ week."  All of these scams make me so mad.  There are a lot of stay at home moms out there that want to be able to make some money but can't because there is nothing to do.  I wish that I could find something and if anyone has any suggestions please feel free to tell me.  Why is it that people find the need to take advantage of people that just want to help their families??  It makes me sick that someone can put this crap on the Internet and sleep soundly at night.  I don't understand how they do it.  They knowingly tell people that they will make them money  but never have any intentions of going through with their promise.  All they do is take your money and then go away.  All of the sudden you don't have a phone number that works or you have an email that goes into the great beyond.  I hate these people and feel that they sound be prosecuted for taking people's money!!  Anyway, sorry to be such a downer but this really bothers me.  Hope this finds you all well.