Saturday, October 9, 2010

Dylan is doing Wonderful!!!

I know that I havent posted in a few days, but to be honest I wanted to make sure everything went smoothly. I didn´t want to jinx anything. On Tuesday and Wednesday Dylan just got shots to boost his bone marrow production. Thursday was the big day!!! We got there at 8:30 am and everything started around 9:30. They took Dylan away into the operating room. That was very hard. Watching him go. These people are wonderful and I know that they have done this many times, but it is still my child and I was scared. I walked up and down the halls the whole time they were back there, which seemed like forever, but in reality it was like 30 minutes. During this time they extracted Dylan´s bone marrow so that they could get the stem cells to infuse in his spine. Once they were finished they wheeled him out and everything was great. His heart was doing wonderful and the extraction went well. There was a cardiologist monitoring his heart the whole time, which made me feel much more comfortable. Dylan woke up about 20 minutes after they brought him in the room. He was very irratable and I could tell he was uncomfortable. This unfortunately is normal considering the extraction in pretty painful. That is why he was put to sleep. So we had to wait around for about 3 hours for the lab to seperate all of the red blood cells from the white cells and the stem cells. Once they did that they brought back the red blood cells and put them in his IV. Dr. Mancias said that the red blood cells that were put back in the IV also contain stem cells and he got 9 million through the IV. Once they got everything seperated it was time to go back into the operating room and infuse the stem cells into the cerebral spinal fluid. Dylan had to be put back to sleep for this because he had to be completely still. The procedure took about an hour and everything went awesome. He was infused with 22 million stem cells, which is an awesome number. After they brought him back in the room he slept about 30 minutes and then he was ready to eat. He had not eaten all day and he was famished!!!!! Once we got home we got him so more milk and food and it was off to bed. Well, the doctors told us that he would probably sleep in and not to worry if he slept later than he nomally did. Of course Dylan wakes up at 3am and is wanting to have a party. He was talking and laughing like it was 10 in the morning. He finally went to bed around 5:30 and slept till 7am. We went back to the hosptial around 10 on Friday morning just so Dr. Mancias could check Dylan out and make sure the injection sites looked good. Everything looked great. We pray that the stem cells will work and will see some improvement in 3 to 4 months.
We went to the planetarium today just to get out of the hotel. It was pretty neat but nothing to exciting. The neat thing was that they had peacocks walking around and parrots flying in an aviary. They were so beautiful and Dylan really seemed to like them. There was an albino female peacock. That was a new one for me. I have to say that this has been a wonderful experience and I pray that it was worth it. I go to sleep thinking about all of this and I wake up thinking about it. It has consumed my life this last week. I will be glad to get back to normal day activites so I am not just thinking about it all of the time!!!! We leave tomorrow at 12:30pm central time. I can`t wait to get home and see Joe and Conner. I have missed them so much!!!!! I will keep you posted on Dylan`s progress as well as all of the wonderful things that Conner is doing as well. Hope this finds you all well. As they say in Mexico. Chao!

1 comment:

  1. So happy all went well. Dylan and Conner are so special to me and remain in my prayers. Safe Journey,
    Diana The Gayle