Dylan and Conner update

I haven't updated on Dylan in a while so I thought I would. He is off all of his heart medications!!!! That is a blessing in itself. We go back to the cardiologist in February to have an echo of his heart to make sure everything looks good. He seems to have grown out of his SVT's but he still has the Hypertrophic Cardiomyopathy. He will have this the rest of his life. We just pray that it will not affect the function of his heart. If it doesn't then he will not have to be on medication for it. All we can do it wait. As far as his Cerebral Palsy goes. He has started a medication called Baclofen. This is used to help with the stiffness. The doctors say some kids it works great with and some it doesn't work at all. I am praying that he is in the group that does help. At 18 months he will start to receive Botox injections. I'm hoping the doctor will give me some while we are there. This will help with the stiffness as well.

Dylan is very close to sitting on his own. He is starting to feed himself with a couple of foods and loves playing in his Bumbo seat. He is reaching and grabbing for everything that is in front of him. His therapies are definitely paying off. He is an amazing little boy and he is teaching me different things everyday.

Conner is my little mad man. He is walking everywhere and starting to run a little bit. He is into everything. He even seems to crack himself up sometimes. He is talking up a storm. He can say dada, mama, night night, and no. He has also learned to shake his head no. As you can imagine this is his favorite thing to do. Everything is no, no matter what it is. He is a riot! I can't get over how much he looks like a little boy now. He doesn't even resemble a baby anymore. It makes me sad but also very happy.

I cried the other day just watching him run around. Its amazing how they grow up right before my eyes. Make sure you cherish every minute you get to spend with your children because one day you will blink and they will be gone, moved out of the house and making one of their own. Have a wonderful New Year's Eve and I can't wait to see what the new year brings.

Christmas and the boys

Well Christmas has come and gone and I have to say I am exhausted. The boys did great in Winfield. With all of the running around that we do they were really great. Santa came and brought them a little four wheeler by power wheels and some other toys. We kept it low key this year considering they had no clue what was going on. Conner kept walking around saying HO HO HO. It was really cute. They got so much stuff. I didn't have any room to put the toys that they already had much less all of the ones they have now. Unfortunately, both of the kids have come home with colds. It is awful. They both have the worst cough and I think Conner is cutting more teeth. Double trouble. I hope everyone had a wonderful Christmas. I can't believe it has come and went already. It's insane how fast time flies by.

My boys and their cups

I am soooo proud of my boys. Not only has Conner been off of his bottle for over a month now, but Dylan is now off of his. I can't believe it but they are both drinking from their sippy cups. Dylan was a little harder than Conner. He fought it but in the end the cup won out. It didn't hurt that I wouldn't give him one once I knew he could use a cup. I am pretty anal about taking bottles away. I can't believe how fast they are growing up. Right before my eyes they have changed into little boys where they used to be tiny little babies. Its amazing to think that this time last year we were in the hospital wondering how long Dylan would be with us and if Conner would ever learn to eat. Oh how times have changed. Conner can't get enough to eat and Dylan is doing so good. He is off of his heart medicine as of yesterday. I am praying that this works and his heart stays strong. Unfortunately, the only way of knowing is by taking him off of his medication. Please say a prayer for him. He is such a little trooper. I can't tell you how much he teaches me everyday. I just wish that I could make him all better. He is a wonderful little boy and he will continue to make great progress. Conner is a little tyrant. He is so funny. He throws and kicks everything. He has also learned to dance and it is absolutely hysterical. Can't beat a 1yr old dropping it like its hot!!!